As my mom's only child, she has waited a long time to have grandchildren and now gets 2 at once. However, she does not want to be viewed as a grandma so has invented the name Su Su (her name is Susan) for the girls to call her. Patrick & I aren't crazy about the name, but I figure the girls will call her whatever they decide. The girls continue to do well. I spoke at length with the doctor yesterday who is amazed by their progress. You can tell that the nurses and doctors are trained not to set time tables as it gets parents' hopes up, but he did say they are ahead of schedule and progressing much faster than they originally projected. They are "85% there on feedings" meaning they are still increasing their amounts daily and will soon achieve the highest amount given through feeding tubes. So, the next step is oral feedings which he thought Geneva would begin as early as Thursday and Lexa a day or two later. He said "the only thing keeping them here is learning to eat orally." "As soon as they learn that, they can go home." I have really seen a change in the past two days with their feeding. Instead of sleeping through them, they are beginning to understand the suck/swallow combination and are sucking their pacifiers and making little noises as their feeding tubes are going so I am confident that they will quickly learn to eat on their own. They continue to gain 1-2 ounces daily and just look so much healthier. Geneva no longer uses her IV line, and today is Lexa's last day of hers. They no longer have to get daily bloodwork as all of their labs continued to be normal. They continue to have normal heartrates, oxygen levels, and blood pressure. We are so happy and hope they can move to the least restrictive bedding soon-- an open twin crib. We can't wait to see how they interact with each other as they have been separated since birth.
As my mom's only child, she has waited a long time to have grandchildren and now gets 2 at once. However, she does not want to be viewed as a grandma so has invented the name Su Su (her name is Susan) for the girls to call her. Patrick & I aren't crazy about the name, but I figure the girls will call her whatever they decide. The girls continue to do well. I spoke at length with the doctor yesterday who is amazed by their progress. You can tell that the nurses and doctors are trained not to set time tables as it gets parents' hopes up, but he did say they are ahead of schedule and progressing much faster than they originally projected. They are "85% there on feedings" meaning they are still increasing their amounts daily and will soon achieve the highest amount given through feeding tubes. So, the next step is oral feedings which he thought Geneva would begin as early as Thursday and Lexa a day or two later. He said "the only thing keeping them here is learning to eat orally." "As soon as they learn that, they can go home." I have really seen a change in the past two days with their feeding. Instead of sleeping through them, they are beginning to understand the suck/swallow combination and are sucking their pacifiers and making little noises as their feeding tubes are going so I am confident that they will quickly learn to eat on their own. They continue to gain 1-2 ounces daily and just look so much healthier. Geneva no longer uses her IV line, and today is Lexa's last day of hers. They no longer have to get daily bloodwork as all of their labs continued to be normal. They continue to have normal heartrates, oxygen levels, and blood pressure. We are so happy and hope they can move to the least restrictive bedding soon-- an open twin crib. We can't wait to see how they interact with each other as they have been separated since birth.
2 comments:
Susan, It's so great to see Geneva and Lexa being held by their parents and grandparents. We wish you lots of loving ahead. When Ian was born, I asked them to have him call me "GG" for Grandmother Goins--and he later shortened it to just "G." My love to all of you. Karen Goins, Sheridan
Geneva and Lexa are SO BEAUTIFUL! It was wonderderful to see such a proud grandmother holding her precious granddaughters. So much love there. My three grandchildren call me GG, short for our family "grandmother" name, Gran-Gran. They love it and even the two year old can say it. Love to you and these two blessings. Patti Brady-Prince, No. Little Rock
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